Top
strumenti

Link Utili

Istituzioni

Istituto Superiore di Sanità - Centro Nazionale Malattie Rare
www.iss.it/cnmr

Ministero della Salute
www.salute.gov.it

Agenzia Italiana del Farmaco - AIFA
www.agenziafarmaco.it

Salute-UE
http://ec.europa.eu/health-eu/health_problems/rare_diseases/index_it.htm

European Medicine Agency - EMA
www.ema.europa.eu

Food and Drug Administration - FDA
www.fda.gov

National Heart, Lung and Blood Institute
www.nhlbi.nih.gov

Centers for Disease Control and Prevention (CDC) - Hemophilia
www.cdc.gov/ncbddd/hemophilia/facts.html

Associazioni e siti italiani

Federazione delle Associazioni Emofilici onlus
www.fedemo.it

Telethon Italia
www.telethon.it/Pagine/Home.aspx

Fondazione Paracelso
www.fondazioneparacelso.it

Associazione Italiana Centri Emofilia (AICE)
www.aiceonline.it

Superabile
www.superabile.it/web/it/Home

CittadinanzAttiva
https://www.cittadinanzattiva.it/

Associazioni pazienti locali

Per contattare le Associazioni aderenti alle Federazioni delle Associazioni Emofilici, visita il sito http://fedemo.it/

Associazioni e siti internazionali

European Haemophilia Consortium - EHC
www.ehc.eu

European Association for Haemophilia and Allied Disorders
www.eahad.org/

World Federation of Hemophilia - WFH
https://www.wfh.org/en/page.aspx?pid=492

International Society of Thrombosis and Haemostasis
http://www.isth.org/default/index.cfm

EURORDIS - Rare Diseases Europe
www.eurordis.org

The Haemophilia Society
www.haemophilia.org.uk

Canadian Hemophilia Society
www.hemophilia.ca

National Hemophilia Foundation
www.hemophilia.org

MedlinePlus - Hemophilia
www.nlm.nih.gov/medlineplus/hemophilia.html

The Cochrane Collaboration
www.cochrane.org

Current Research (ClinicalTrials.gov)
http://clinicaltrials.gov/ct/search;jsessionid=87FC85ED696726BEA93ACC56D09E677B?term=hemophilia

NHLBI Children and Clinical Trials
www.nhlbi.nih.gov/childrenandclinicalstudies/index.php

Hemophilia Village
www.hemophiliavillage.com

Bottom

PP-GIP-ITA-1350

Emo Boot